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16:00 - 16:30 30 mins
Registration opens

Location: The Broad Institute Lobby

Please note registration will be open throughout the entire film festival. 

16:30 - 17:00 30 mins
Welcome and Fireside Chat

Location: The Broad Institute Auditorium

Fireside Chat: Why are we here tonight?  

Before the lights dim and the films roll, we will discuss what brings us together this evening. The room will be filled with researchers, patients, caregivers, patient advocates, business executives, and perhaps those just hoping to support a path to cures.  This fireside chat will touch on what we have to learn from each other, how we can best communicate, and how collaboration can propel cures. 

  • Moderator Nicole Boice - Founder, Global Genes
  • Speaker Daniel DeFabio - Co-Founder, DISORDER: The Rare Disease Film Festival
  • Speaker Michelle Hall - Patient, Advocate, and Accountant, Epidermolysis Bullosa (EB) Research Partnership
  • Speaker Daniel MacArthur - Associate Professor, Harvard, and Co-Director of the Rare Disease Group, Broad Institute, Harvard Medical School
17:00 - 19:15 135 mins
Films

Location: The Broad Institute Auditorium 


Learn more about the films here 

  • Rare in Common
  • This is Michelle
  • Menkes Disease: Finding Help & Hope
  • The Voices of Siblings in Rare Disease (Newly created: Not shown at the 2017 festival)
  • New lives: stories linked by Duchenne and Becker Muscular Dystrophy (Trailer- Newly created: Not shown at the 2017 festival)
  • Finn
  • Life & Atrophy
  • Imagine
  • Tess Is Not Alone
  • Up for Air (Trailer)
  • The Magic Bracelet
  • Rare Is Not an Excuse
19:15 - 20:30 75 mins
Reception

Location: The Broad Institute Lobby